Friday, November 5, 2010

FRIDAY, NOVEMBER 5, 2010

Today when I got home Carol asked me twice how my day was and commented on how it was great that I got two days off for the weekend. I thought this was pretty good since she told Dona (the neighbor who came back to town yesterday) that I worked at a pet store... When I asked her what she wanted to eat she said we should make use of the left-overs. This in mind I got her to eat the most protein/fat rich left-over in the fridge, eggs and sausage. She asked, "now, where is Tom?" I told her he was at Emeritis in Jensen Beach. I told her he wasn't in the hospital, just to clarify he wasn't at Lawnwood, where she told Dona he was the day before. Carol asked if I could tell on that thing (my laptop) if he was doing OK and also commented that she was worried about him. I reminded her that she was going to go visit him yesterday, but told Cynthia that she didn't want to. "Yea," she explained, "I just don't want to see him like that." "He's going to be there for awhile," I said. She just solemnly nodded her head and went back to her meal.
Later we went to check her medicine, but the patches were gone from the box. I looked everywhere for them, and finally found them hidden under some towels in her closet. "Well, what the heck is going on?" she exclaimed. So many replies were going through my head, but I settled on, "alright, now that we found them, let's get you set up with a new one." Then I went to go work out. When I got back she was in her room.
I'm planning on visiting Tom tomorrow, so we will see if I can get her to come with me...

Wednesday, November 3, 2010

WEDNESDAY, NOVEMBER 3, 2010

Carol was up some of the night last night, but didn't manage to eat anything of substance in that time. When I left work I also pondered over why the fridge had been pulled away from the wall in the middle of the night. A little early morning/late night kitchen cleaning?
Got home from work and Carol was no where to be found, but there was one of her "stews" on the stove. It was made with my left over chicken, so I know she didn't eat very much, if any by how meager the portion of chicken I left in there. When I was looking in the fridge for a more appetizing dinner she came in from the back door. I asked her what she wanted to eat and she said she wasn't hungry. This is when I decided I should say something, like, "you need some protein and vegetables in your system, will you be eating some of the stew you made?" and "I'm worried about you," and "your heart and brain can't function on only 300 calories a day in just sugar." She replied that it was nice for me to worry but she wasn't doing OK. I made a huge thing of nachos and although she didn't want her own plate, she did pick off mine. Is Mexican food the key here?
A bit ago I tentatively came in to her room where she had decided she needed to go lay down earlier, and I asked if she wanted me to put away her stew for her. I could just go ahead and throw it away, but I wanted to make sure she took her medicine. She did, but missed taking her patch. I set her up and made her promise she'd eat dinner....which she did...barely.
Between Cynthia and I, we will get her to eat a whole bunch tomorrow...hopefully.

Tuesday, November 2, 2010

TUESDAY, NOVEMBER 2, 2010

After a long weekend of hanging out with John (although he got out of town last Friday) and Logan, going on the boat, boogie boarding on the beach, checking out the Jensen bar scene, relaxing by the pool, eating Cuban food at the most famous Cuban restaurant in Little Havana, Miami, and being treated to the most expensive Halloween night out (cover was $30... PER PERSON at the Mansion in South Beach, Miami), I was forced to drive my boyfriend back to the airport this morning and accept that the rest of the day would be spent in my cubicle...and trying to get Carol to eat dinner. While I was at work Cynthia brought Carol to visit Tom and asked if I would like her to bring over her trailer some time to get the rest of the stuff to fill his new bachelor pad. Up until now I have been able to pass the task of visiting my grandfather off without me ever getting involved, so I haven't seen the place. Thoughts on moving more furniture in...people who have been there...? You guys didn't inform me you got him set up in a palace. The way Cynthia was talking about the place, I thought she might plan on moving her whole family in there. Let me know.
Cynthia says that Tom seems really lost and wanted to know when he got to go home, but didn't seem angry or on edge about it. Carol was doing really well with Cynthia from what I saw, which was about ten minutes when they got home at 6:30, but she hasn't been consistent with her eating. On Sunday Logan made Mahi Mahi and chicken tacos and Carol kept grabbing more and more, but yesterday we asked her if she wanted tai food (described finally by Logan as healthy lo mien), but she said she'd be fine with left-overs (to the word "healthy" she revolted). She pulled out two plates of left-overs, tacos and her KFC pop-corn chicken from Sunday, but when we got back I saw that she just combined the two plates into a higher stacked plate and put it back in the fridge. She didn't come out again. After Cynthia left today she asked if I was hungry, I said yes, thinking we would figure out dinner together, but she just handed me a cheeseburger from McDonald's that I'm sure Cynthia bought for her. I told her that it was her burger and I was in the mood for a salad anywho. She didn't think she was hungry and went to her room and hasn't come out in about 3 hours. As far as I can tell, she's eaten Halloween candy all day, and not much of it. Which reminds me to also tell you that she hasn't been acting panicked or crying, except on Sunday (Halloween) when a child came to the door and she didn't have candy to give him (how this is possible...?) and she told me that his dad got "really mad at her." I told her that the child will probably receive tons more candy and we can just go to the store and get more for the children that come later and she told me through sobs that she thinks of ALL the kids as her kids...OK. So we ran over to the gas station to grab some candy to get us through until Logan and I went to get groceries later, and she was fine. Then when we finally did go get groceries I got a little apprehensive myself because there were LOTS of kids in the neighborhood. More than our trivial about of gas candy could supply. I rushed Logan through his fish and salsa, etc purchases, loaded candy in the cart and we raced home. I saw the candy was no longer near the door and so I asked Carol how it was going. She told me that some kids came and she didn't have candy (seemed way more relaxed about it) and we told her we now had plenty! Waves of kids came to the door all night-I don't think I've ever been the sole candy-hander-out person before-but later on I looked in the trash to find wrappers of the gas station candy in the trash...

Pinapple Fest in Jensen Beach this weekend! So, if anyone knows of any children around the age of 4 and 5 who like carnivals and live in Florida, you should let them know about it. Big bonus if the parents' names both start with J and they want to take the boat out with their awesome neice!

Wednesday, October 27, 2010

Guest Post From John

Moving Day.


I don’t know why Jean was so wound up. It’s nice and peaceful here. We passed in the airport, I saw someone skipping and doing cartwheels in the middle of the airport. Odd I thought, even odder to be Jean. We (she) talked (I listened and took notes.) She left me with a 2 inch binder full of documents, copious notes, and a 20+ item todo list. No worries I got all week...Plus she really did all the hard work.


So moving day was scheduled for Tuesday. Tom was due in sometime, no one could really pinpoint. I guess Emeritus time is like Jamaica time. It happens when it happens. I decided to visit early to knock a couple items off the list and survey the land.


Emeritus is a national long term assisted care provider. The facility itself is rather nice. It’s in Jensen Beach, across the road from the Indian River. From Tom’s window, if you look though the palm trees, you can see the water. The downside is that this a special memory care unit, specializing in Alzheimer’s care. Which means the ‘inmates’ are locked in to prevent them from wondering off. After conversing with a few of the residents, physically wondering off was certainly a possibility, mentally wondering was ongoing. I’m not sure which land some may have visiting. But as is their motto at Emeritus, ‘Every day is a new journey.’


Upon entering the ‘unit’ (basically the 3rd floor), I observe the daily news and story time. This is where John the memory unit director, relays the daily news and stories of the day. All the mobile residents were in attendance circled around a couple of tables. Thinking this was poker time, I asked what the ante was, and I hope it’s not strip poker (cause the old gals had way more clothes on than I.)


The story of the moment was about a gator that was in someone’s yard. I had heard that earlier in the day, but I expressed my surprise anyway. To this Abby #1 and #2 both expressed great interest that I was involved somehow.

Abby #1 & #2: “Did you see it?”

John: “Oh Yes, it was enormous”

Abby #1: “How big?”

John: Pointing from one wall to the other. “Big as a boat.”

Abby #2: “Really”

John: “Oh Yes, I was afraid to get out of my car.”


Oh, what stories we can tell at the memory unit. The rest of the visit fairly uneventful. I went home afterwards to rest up for the 3 o’clock visit. Knowing Tom would probably be there and Carol would be along.


Honestly I don’t know what to expect when I see Tom. But I’m guessing that he will want to go home, and that’s about what we got. We arrive to find him in his chair (he doesn’t realize that it’s his chair, even though the cushions are molded to his butt.) He’s smelly, unshaven, and confused. Carol is good with him, explaining five or ten times what happened to get him here. She helps him change clothes, cause he really needed too.


Sidenote: It took me a while to figure out why he had a latex glove sticking out of his pocket. It wasn’t in his pocket, but tied around two or three belt loops acting as a de-facto hospital belt. Who thinks of these things?


Jean did an awesome job furnishing his room with his clothes, chair, bed etc.. But Carol and I had our best laugh after changing him. For some reason he thought that long pants should be the outfit of the day, so we tried to outfit him with the only pair of long jeans in the dresser. We were complexed, because they were too small, which is odd because all of his clothes are normally 3 sizes too big. Carol eventually realized that maybe the pants were hers, but also surprised that they almost fit him.


While changing again, I excused myself, because really... who wants to see that? So while I was waiting in the commons area, outside of Tom’s room, Abby #3 walks by. She waltzes straight into Tom’s room like she belongs there. I have no idea what happened next, but about a minute later, she came out and then took a chair across from me in the commons. I study her, not really knowing what to say. About a minute of silence later, she looks at me and states, “Well it looks like you can handle this area, I’ll leave it under your control.” And then further, “I need to go home and take care of the kids.” My reply, “I, I mamm, got it covered.”


The rest of the day, mostly uneventful. We visited about an hour and a half. At around 5pm, we escorted him to dinner and made our get-away. Moving day complete.


Day 2.


Same people, different personalities. I knew Carol didn’t put on a new patch yesterday, but didn’t push her on it. It was a potentially explosive day and this mine field is new to me. However she was eating well and generally quite sociable. Today was a different story. She didn’t want to eat and when it came time to visit Tom, she was very apprehensive, with heavy sighs and breathing. I thought she may start hyperventilating. I gave her an option of not visiting Tom, saying that Emeritus suggested that we don’t visit the first two weeks, so Tom can adjust to the surroundings (they did indeed suggest this.) But she said that it was her “job” and that she needed to do what she needed to do. She attempted to bring back the same soiled cloth that we brought home yesterday. Not remembering that we did that.


When we arrived, Carol didn’t want to go in at first but did anyway. Tom was more combative today. Wanting to know, “where the hell have you been?” So in general more like Tom. Carol too was ready to fire back. I thought maybe we would have MMA battle. New day, new journey.


At first I remained silent, mostly because I feared to tread in unknown waters, secondly because I couldn’t not watch. Eventually, I did start to steer the conversation to calm waters. Carol decided that she needed a break and bounced from the room. John the director must have saw Carol in the commons area, so he came to visit. Tom reran the same conversation past him. To which I saw John start to get flustered. Once again steering the boat back to calmer waters.


The man has a single focus. I’m used to repeat conversations with Tom, but generally, the topics switch between Jim, work, where am I living, where’s my hair, etc... Not now, one and only one topic. I can understand why the current topic is stuck, but holy cow, it necessitates patience.


Tom: What is this place?

John: It’s a assisted care facility.

Tom: What?

John: It’s kinda of in between a hospital and home.

Tom: Why am I here?

John: Because you had some health issues a week ago.

Tom: Really?

John: Yes, you were in the hospital for a week.

Tom: Honest to God, I don’t remember a thing.

John: Yes, I know. That’s why you are here.

Tom: If you weren’t telling me this, I would think that I’ve gone bonkers. (I bit my tongue on the obvious comeback here)

John: Yes, I know.

Tom: When will I get out of here?

John: When you get better.


And so on and on. Rinse and repeat. I stop counting the times, but somewhere beyond a dozen time we had this conversation. Eventually it dawned on me, I was having a Groundhogs Day moment. Bill Murray keeps repeating the same day, making adjustment along the way to improve the outcome. I was doing the same with Tom’s conversation. I was fine tuning the replies to avoid the pitfalls. Example, steer clear of the doctor topic:


Tom: Who’s keeping me here?

John: The doctors will decide when you are healthy enough to go home.

Tom: Which doctor?

Carol: Doctor So and So

Tom: Agitated. I’ve never even seen him! How can he make decisions about me!


And so it went on and on....


Eventually dinner time came. We walked him to the dining section and sat him with 2 old-timers, who may or may not have been conscious, but seemed harmless. Maybe their were on a far away journey....



JB


Saturday, October 23, 2010

Guest Post from Mom
I thought I'd give Erika a break and post a blog. I got to Florida on Monday night. Tuesday seems so long ago but I drove to the other side of Florida to get my brother Joel so we could make decisions together with Carol. What seemed obvious to me and maybe anyone reading this blog, is that my Dad can no longer be taken care of in his home. Kind words and patience, which Carol had more of than most of us, cannot keep him from being frustrated and confused, irritable and frightening. Fortunately, I think, the hospital and his doctors agree. I hope our family does too.
They gave us a list of places to look at and while Carol and Joel went to visit a couple of them on Wednesday, I rummaged through the pile of bills, flyer's and notes that were on Carol's desk to see what, besides the water bill, I had missed since she just stacks them and doesn't let anyone see them. I looked on the desk, in the desk, under the desk and under her pillow (where we last found her car keys). Each advertisement for a pizza joint was just as lovingly attended to as the final notice for payment of "HOUSE INSURANCE". Just one of the many details to attend to this week.
Joel and Carol came back from there trip just as Erika and I got back from a seminar about how to apply for aid and assistance benefits from the veterans administration. They are depressed about the homes they visited but Erika and I were pretty pumped up about the number of euphemism that one man could use when talking about the needs of our "loved ones". We all had a little wine which seemed to help. That and that fact that we got a new list of places to visit.
Joel and I went a visiting on Thursday and found two places that we thought were pretty good. Of course I liked one and Joel liked the other better. Now we wait so they can interview Tom and see if they think he will fit into their establishment. Joel goes home and Carol and I go shopping for food. Do you know how many kinds of cookies there are in Publix? I do now. Toll House are the preferred favorite. Erika and I go shopping for baby presents and little girl birthday presents---- spent too much money. I think because it felt so good to do something life affirming.
Friday Carol and I went to both the homes that Joel and I had agreed were ok. She sided with Joel and both places were willing to take Tom. So we are signing him up for a lovely place where he can see the ocean from his room. He can't move in until Saturday so that will give us some time to furnish the place. I went to the lawyer on Friday afternoon after taking Carol home. Now all I have to do is find more documents, including a marriage certificate for Tom and MY Mom which should be interesting since I can't ask her and she eloped AND I don't know when exactly or where exactly they were married. The veterans administration certainly knows how to keep their money by making it difficult for you to access. Here's my advice to anyone ------ Preplan for your own demise and do not make your children and "loved ones" hunt for documents under your bed.
Today we (Carol and I) bought Tom a bed and have begun discussing what of his things we should take to his new place. He looks terribly frail and right now it would be hard to believe that he could frighten anyone. Carol is handling it with far more grace than I could hope for but we are helping her to put her husband in a home-- one he's not going to come out of. It's #$&^ing sad.
Good news, John is coming on Monday so we can tag team and Erika and Carol will have some help getting Dad settled. I will go home on Monday to my "real job".

Monday, October 18, 2010

MONDAY, OCTOBER 18, 2010

Grandpa was upset about his car and saying someone "stole it," then talking to my mom, calming down, then getting worked up again for pretty much the whole weekend straight. On Saturday I decided I had had enough and went to visit Joel and his family on the gulf coast (3 hours away) for the night. I got Tom and Carol fed a big lunch and got their medicine in them, packed a bag and walked out the door as Grandpa continued to shout at me.
Going to visit Joel's family was just what I needed. Their new home is nice and open with a pool screened in the back, and located in good location between cities and the beach. I went from being told to get out of Tom's home and missing hugs, to feeling like I belonged, could relax and barely had a moment where the kids weren't giving tons of affection. A big breakfast on Sunday and we were off to Manesota (like Minnesota!) Beach. But, later on Sunday I had to go home to make sure the Grandparents had eaten all day and had taken their medicine, so I headed home reluctantly.
I knew Grandpa hadn't calmed down when Bill told me that he had been calling him all day. I walked into the house through the back door because I had been locked out of the screen entrance in the front. Grandpa was on the phone with my mom talking about his car, and Carol asked me, "Where did you come from?" So, I told her that the front screen door was locked, and can she please try not to do that anymore. I swear I didn't say this in a mean way, but she started crying and saying that she didn't mean it. She must have been yelled at a lot since I left. I calmed her down telling her that I knew she didn't mean to and it wasn't a big deal.
Back to Grandpa, Kenny and my mom had decided to lie and tell him that it would cost $2,500 to fix. After showing him a map of where his car was on the computer, and more answers from my mom, they decided it would be best if they had it towed (unfixed) back to the house, and wait until Bill came down to try and fix it for cheaper. I wrote him a letter explaining all this, and even drew a little map of where his car is. He said thank you for doing all that, and seemed generally calmed down. I took this time to start getting ready for bed. Right when I'm about to fall asleep, Carol knocks on the door saying I needed to answer some questions Grandpa has. So, we stood in their bedroom with him in his boxers as I continuously explained the situation with his car. Finally I located the note I had written him and read it to him. I told Carol I had to go to bed because I had to work the next morning and she said she could understand because she had to as well (she had even written PGA on the calendar). I told her that she was just going to have to keep referring him back to that note, and fell asleep exhausted.
At about 3am I heard a forceful knock on my bedroom door. So I groggily said, "What?" to which the reply was "it's the police" WHAT?! I came out and he explained that Grandpa had hit Carol (was very vague) and referred me to some pamphlets on domestics abuse that had been placed on the counter. He said that they had to hold my Grandpa for awhile, but decided to take him to a mental health facility instead of jail. They had also debated for about 20 minutes deciding if they should take Carol to the hospital or not, but since she was still breathing heavily after all that time, they decided it was for the best. Yes, I slept through all of this. The police officer was the very last one to leave and was going to lock up the house, but noticed my door shut and decided to "make sure".
So I get to the right hospital and find my way to Carol who looks incredibly small in all the hospital blankets. I talk to the doctor, I put my mom on the phone with the doctor, and a few nurses gush at how sweet my grandma is. Since she left the house without her shoes, purse and only in her night robe, we walk out of the hospital with her wrapped in hospital blankets and shuffling in hospital socks. The nurses assure me she doesn't have these things, but she keeps asking where they are, even at one point telling me that we should find Tom in the hospital because he probably has her stuff. I tell her that Tom isn't in the same hospital and she peers at me confused. I get her home at a little before 5AM and explain the importance of getting some rest. I'm shocked she doesn't go straight to bed with all the relaxers they gave her. She knocks on my door within ten minutes and shows me her cell phone and her necklace which she thinks one of the police officers left at the house, adding that we should "put it somewhere where the kids can't get to it." I walk her to her room and tell her we will figure it out in the morning.
I went to work this morning, and when I get home at 3pm to check on her, she's still sleeping. When she wakes up we have some food and the doctor in charge of Tom calls to hear what happens. I find myself reminding her of things to tell the person because she starts out being like, "Oh, he was stressed this week...he gave me a kind of hurtful love push..." Then I get on the phone with the doctor to explain Tom's behavior since I've lived here, and give her my mom's number who she also talked to. She seemed like she was really understanding and helpful. Even explaining that it is common for people who are losing control to act out in these ways.
Otherwise, my mom is coming into town tonight (I leave for Palm Beach in about an hour) and Carol is kind of lost still. When I went to the bank and came home she asked me where Tom was. I reminded her that he is going to be gone for a few days and we need to concentrate on her being healthy and SAFE. She says it's too quite and keeps saying how it's a good think MauMau is around so it's not so lonely. Hopefully having my mom around will liven the house up some.
She just came in and asked where Grandpa is again. She says she really wants to make sure he's OK. We went from an angry house to a very sad house.

Friday, October 15, 2010

FRIDAY, OCTOBER 15, 2010

I had to go through the back porch door when I got home from work because the screen door in the front was locked. In the kitchen Grandpa had a phone book in his lap and asked why I was coming in so much later than usual. I reminded him that I was actually an hour earlier than usual, but maybe he was thinking about Cynthia. Why did he have the phone book in his lap? On Wednesday he decided that since his car wasn't working (Bill took a fuse or something out which I have) that he would have it towed to a shop. Not only does he not remember what shop it got towed to, but for the past few days he has been pretty sure Carol and/or I took his car somewhere behind his back, i.e. "NO ONE TELLS ME ANYTHING!" He's calmed down in the past few days, even telling my mom yesterday "Everything is fine here. My car's being repaired and it should be ready tomorrow," but the search continues. Perhaps it's better wherever it is and with whatever idiot towed a car for a man who clearly couldn't make that decision. I wonder how many places he had to call before someone said, "Yea, you can't have a normal conversation for 5 minutes, but yea, let's tow your car." So anyway, I ask Grandpa where Carol is and he says he doesn't know but she took the little car. By the looks of Grandpa, I'm guessing he was yelling at her about the car and she escaped (on Wednesday it got so bad me and Carol took a 2 hour dinner at Olive Garden). He said he had just eaten a sandwich so I gave him his medicine and took a cue from Carol and headed out to a yoga class.
When I got back Grandpa greeted me at the door in his boxers asking, "Are you finally home?" Then looked taken aback when he realized it was me. "I sure am, miss me?" I answered anyway. I headed towards the kitchen and he said, "if you find Carol will you tell her to come into the bedroom as soon as possible?" Uh? "I'm in the kitchen!" Carol sang from the kitchen. So Grandpa decided to come to the kitchen in his boxers to confront Carol with the important thing he needed to talk to her about, "Do you have a light?"
Grandpa shuffled off to his room and Carol said, "Well, yea, like I was saying, I had a good day." Uh, when did we start this conversation? This is the first thing she's said to me today. I play along as I look for dinner and nonchalantly ask her where she was when I got home. She said no where special, then said not too far from here. I'm pretty sure she couldn't remember. When I opened the fridge I noticed a bottle of wine that was 1/4 full and definitely wasn't there Wednesday night. I know because I had to tear apart the fridge on Wednesday trying to find all the water in there to brush my teeth, etc, as the water was shut off until Thursday afternoon. Maybe it would be a better situation if I didn't remember all of these things.